Jake's Newsletter
November 1, 2009
Another month with good news. Jake is still doing very well with his sippy cup. He's able to see it on the table, reach out with both hands and bring it to his mouth. We are very proud of him. The Behavioral Therapy is certainly helping, but Mom's countless hours are the contributing factor. Jake also had an Upper Endoscopy last month. He's battled Reflux for years and they wanted to ensure all is well, which it is. Jake's health has been very well in the last few months and we are so grateful for it.
About 4 years ago, a magazine suggested embracing the wheelchair and incorporating it into the Halloween costume. At the time, I owned a motorcycle so Jake dressed up as a biker. This has become a tradition now and every year we send his picture to the magazine. You can see the pictures of past Halloween's and the corresponding magazine articles below. Last year, Mom wanted him to be a boxer, so I built a boxing ring around his wheelchair. This year, Mom wanted him to be UPS driver (guess where Mom works?). This is actually a little creative thinking by Mom. She's running a half marathon next year for Cure CMD. Once we start the fundraising, this picture will come in handy at her work! :-)
Speaking of the marathon next year, we've already received so much support. Many other parents and family members of Congential Muscular Dystrophy are running the half marathon. Once again you've proved our friends and family are the best anyone can have. In order to join Team CureCMD, they ask that the runner's try to raise $500. Jen's cousin, Scott Daley, has already signed up to meet Jen in New Jersey for the marathon and join Jake's cause. Scott's goal is much loftier at $2,000. As if this weren't amazing enough, other friends are also considering meeting them both there and joining the team. Patti Barcomb is going just to support Jen and will volunteer at a water stand along the marathon route.
Thanks again for following our boy. It means the world to us to know that we have so many people who care about our son!
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