Do it Yourself - Special needs parents are faced with many dilemmas. Often times, the solution can be very costly. If you are crafty and with a little imagination, you can provide what you need without the significant cost. Jake needed a bed that he couldn't fall out of, but we didn't want a hospital bed in his room. They sell comparable beds for $5,000. Joey built Jake's bed for $900. This is another picture of Jake's bed.

Helpful links - The following links have been very helpful to us. Just let us know if you need information on a particular topic, we'll be happy to assist in the research.

- Finally, there is an organization that is 100% dedicated to curing Congenital Muscular Dystrophy. Curing CMD is their sole mission. Please join us in our quest for a cure.

Muscular Dystrophy Association - Learn more about Jake's neuromuscular disorder.



This is the Therasuit that your donations made possible. See Jake's Newsletters for the benefits made possible.

HyperBaric Oxygen Treatment (HBOT)- We hope to be able to afford this for Jake as well.

The Family Cafe serves as source of information for individuals with disabilities on an ongoing basis in a number of ways.

Epilepsy.com is a good place to learn more about epilepsy and seizures.

The Lighthouse of Pinellas is a wonderful resource for individuals with vision impairment in Pinellas County Florida.

The Caring Bridge provides personalized websites that support and connect loved ones during critical illness, treatment and recovery. Jennifer loves this site, it's perfect if you need to share info and are unable to perform web development.

The Enabling Devices is a company dedicated to developing affordable learning and assistive devices to help people of all ages with disabling conditions.

Research - This is the place for the latest information, such as Muscular Dystrophy and Stem Cell research, check back for more information.

Anti-Cell death compound to be tested in Congenital Muscular Dystophy

Stem Cell research

Forum/Blog (Coming Soon)- A safe haven to share stories (good or bad)
Vent about the frustrations disabled families encounter from Financial to "Why do they keep staring at me?" Or if you're simply in a bad mood and need to share with someone who understands.